Monday, 7 April 2014

My condition in recent times

Good News:

  • Seizures at bay. Most recent one was on the 27th of March 2014. They are lessening in severity and frequency as well
  • Self injury is down from what it was last year- most likely due to increased sensory awareness
  • I consider myself "fluent" in sign language nowadays (well, I have a lot to learn but I can carry out a basic conversation)

Bad News:

  • I still cannot speak with ACTUAL WORDS (grrrrr)
  • I still have melt downs over random things 
  • Lucia's car died (it was 14 years old) 

For the anon who asked. I hope this helped 

Saturday, 30 November 2013

Autistic Misunderstandings

Whenever you see an autistic at the store please don't yell "WHAT DOES THE FOX SAY??!?" at the top of your lungs.

I don't care how mad you are. I don't care how high you are. I don't care how drunk you are. Just don't do it.

Wednesday, 26 June 2013

The Gruberova war is back on-BRING IT!!!

This is it. The armistice has been scooped and destroyed. And I shall not let my guard down against these Grubero-philes who defend bad art and bad singing. 

Remember La Straniera? Guess who's singing it now-Gruberova. In this particularly decrepit performance, Gruberova's awful scoop-scoop-scooooooooooooops, fragmented and fluff-hollow middle voice, horrible intonation, revolting cadenzas and overall bad artistry are clearly audible throughout. Here's the video:

 uploaded by none other than our Gruberovian Queen coloraturafan.

And as you see in the comments section the grubero-fags are either turning a deaf ear to the Gruberovatrocity or are simply in denial that Edita is terrible and needs an egg shower. Even Coloraturafan knows that his Gruberova is awful; he went as far as to block me and another Gruberova gadfly who had posted less-than-positive reviews of this demonstration. He is just paranoid that one day the cotton bubble surrounding Edita Gruberova shall unravel, exposing her to be the clown she is.

Pay attention to MegaOperafreak-a Grubero-fag who has previously attacked Alexandrina Pendatchanska's 2001 Straniera in favour of Gruberova's (the very Gruberova in which there's already a scoop ten seconds in!!). Criticising Cecilia Bartoli's recent Norma (with Sumi Jo; although it's not perfect, it's still decent) in favour of Gruberova's (the Casta Diva alone suffocated as if she were singing with a pillow in her throat-even though she was singing the higher version!). This one here epitomises the sheer stanism of Edita's followers.

Oddly, this reminds me of the Netrebko-Callas-Dessay wars of late 2009-early 2010-the only difference is that I am not a mediator, I am staunchly anti-Gruberova and pro-Belcanto (as opposed to Gruberova's blind followers who have not the slightest idea about the bel canto method whatsoever).

any last words? BRING IT!!!!!!!!!!!!

Wednesday, 19 June 2013

Back on the Scene

Yes, I have returned to the scene, and better than ever!

And yes, I have been on hiatus because of seizures, I had an exceedingly scary grand mal which got me whisked away t the E.R. where I remained until 6/05; what they had shot me full of there had gotten to me so I was essentially bedridden, I did not return to my energetic old self until the 6/13. The nurse assigned to me wanted to do my EEG; however, Lucia objected as I was all so high-strung that I would descend into a melt down and damage the machinery, and that I have had countless EEG's done in the past and they never revealed anything. So she gave me a dose of I-don't-know-what (the basic rule of Nursing 101-if you have absolutely no idea of what to do: live by the syringe, die by the syringe), but despite me feeling very tired it worked, (almost) no more seizures.
As a result, I have started on this new "Antiseizure" diet which reduces the seizures severity and frequency (have not had one since 6/08); this means that I do not have to constantly worry about falling down hard on the floor, extremely annoying if it happens to me this much-and that I can return back to the blogosphere.

Lucrezia got an i-Pad (they're taking over the earth!!!) that we've been obsessed with; she's been all talk lately about getting a twitter account. She has been so obsessed that if as much as an unsuspecting drop of di-hydrogen monoxide even vaguely graze the surface of her vital device, she will let out a shrill and piercing Shriek, and will not settle until the entire screen has been vigorously scrubbed with means of her choice. However, she still lets us use it (albeit under her strict watch), and hasn't been too uptight if I tap a tad too fiercely or if Lucia sets it near the sink (but let water touch it? Arrivederci, mia cara Lucia!).

(And did I tell you Annabelle is now visiting her mother in Ulsan?)

Maxwell van Simionato
On the Nineteenth of June, 2013

Wednesday, 13 March 2013

And all because he knew too much

And the fortunate events of the days of my past have returned. 

At around 10:15 AM I receive a rude awakening from a grand mal seizure. I find myself on the floor, still tense yet tired from all of the repeated stiffening and trembling, still frothing at the mouth, tongue sliced and bleeding, the muscles in my face repeatedly grimacing until those ache as well.

Not fun.

I still manage to find my way from my room, through the hallways, down the stairs, and into the chair I sit in each morning. Lucrezia was already downstairs, and she could tell by just one look at me what had happened.

" Oh, Max, you've had a seizure!" she gasped. "Are you all better now?"

I try the best that I can to sign yes. I lied.

For Lucrezia will panic if I am not 'all better now', because that translates to 'something else is on the way!' And if 'something else is on the way!', then she would overreact and make a huge deal over a seizure which is as normal to me as breathing.

 "That's good," she says. 

Now I have come out of the seizure completely and am well enough to walk around on my own. I stand and follow Lucrezia to her room, where she had been organising her clothes-she meant to buy laundry detergent but forgot as soon as I had come downstairs. And she wanted to go now.

So I followed Lucrezia to the store for laundry detergent (and a few more things, it turned out), no meltdowns or disruptions. I was calm for the entire shopping trip. 

Returning from the store, Lucia and Annabelle having returned from their own errands, we all relaxed and played Galina Baranova. Not one single meltdown when the CD skipped.

And thus the days of calm have arrived. We all know that this is the calm before the storm.

How long will it last? That I wish to know.