Today I finally went home from the hospital after I had a grand mal seizure on the December 18th that lasted about 115 minutes in length, followed by another one that lasted 92. Although my seizures have always been this long (even longer) they haven't been that frequent.
The following day I had 5 grand mal seizures (one nocturnal) each around 78-96 minutes. I could not sleep and was severely irritable and had meltdowns so severe they had to put restraints on my wrists so I could not get out of the bed and/or hit myself. Everyone was in a constant state of fear, as no one knew when I would snap and fly into a rage.
On the 20th I had 6 grand mal seizures and 3 tonic-clonic-tonic ones. Lucia forgot to time them but we know that all were well over 120 minutes. I literally seized all day. The exact thing happened today. So far I have had 4 severe grand mal seizures over 120 as well as a small partial one lasting about a few seconds before lapsing into an over 180-minute long tonic-clonic-tonic seizure. My body is tired; it has done nothing but seize hard, violently, for hours at a time, I constantly have postictal spasms that cause me to fly off into a meltdown; I was so spastic that I choked whenever I attempted to eat or drink; I have a weird feeling in my hands no amount of flapping would get rid of.
We depart for our house, my seizures unable to be controlled by even hospital staff.
On the way, I had a seizure in the car. Since we arrived at the house far before it stopped, Lucia had to remain in the car so that she could keep me in the Seizure Safe position (head held and body rolled onto its side) and so that Lucrezia could run off into the house 30 minutes into it. (She's new.) This one again lasted over 180 minutes.
Once inside, as if on cue, I fell again into a seizure. This was to be my longest one today so far; it clocked in at 196 minutes.
That's when I got scared. That long of a seizure can be deadly.
These have always been long, but never this frequent. Today's total amount=7.
Three of these were super-seizures. This is not good.
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